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Information about all aspects of finances affected by a serious health condition. Includes income sources such as work, investments, and private and government disability programs, and expenses such as medical bills, and how to deal with financial problems.
Information about all aspects of health care from choosing a doctor and treatment, staying safe in a hospital, to end of life care. Includes how to obtain, choose and maximize health insurance policies.
Answers to your practical questions such as how to travel safely despite your health condition, how to avoid getting infected by a pet, and what to say or not say to an insurance company.

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To locate a reputable company that has been successful negotiating medical bills:

  • Ask your local and/or national non-profit disease specific organization.
  • Check with members of your support group.
  • If you can't find a direct recommendation, you can find a professional through:
    • Medical Billing Advocates of America which has advocates in each state. To locate an advocate in your area, see: http://billadvocates.com/FINDANADVOCATE/tabid/69/Default.aspx offsite link. Tel.: 540.387.5870
    • The Alliance of Claims Assistance Professionals: www.claims.org offsite link. Tel.: 888.394.5163
    • The internet. Search in your favorite search engine on words such as "professionals to negotiate hospital bills" or "medical bill advocates."

Professionals charge on an hourly basis or a percentage of the amount the professional saves you. The amount depends on the region of the country and the person's experience.

When you locate a professional, at least ask:

  • What is the person's experience in the field?
  • What sucess has the person had with situations like yours?
  • His or her Training?
  • Fee structure?
  • For references from 3 former clients (and call them!). The only way to know that references are real is to contact them.
  • Is a license required in your state? 
    • If so, is the person licensed? 
    • If licensing is required, you can check the person's reputation with your state's licensing bureau.

If any company you contact asks you to give them money to start the arrangement or to cover expenses, consider this a red flag. Move on to another company.

If you find a particularly helpful company, please share the company's name and contact information, as well as the details of what happened. E mail to: Survivorship A to Z


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