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Information about all aspects of finances affected by a serious health condition. Includes income sources such as work, investments, and private and government disability programs, and expenses such as medical bills, and how to deal with financial problems.
Information about all aspects of health care from choosing a doctor and treatment, staying safe in a hospital, to end of life care. Includes how to obtain, choose and maximize health insurance policies.
Answers to your practical questions such as how to travel safely despite your health condition, how to avoid getting infected by a pet, and what to say or not say to an insurance company.

Information About Your Condition


To learn about your health condition, the first place to start is with your doctor. In addition to what she or he tells you, the doctor may have printed information to give you, or sources to which to point you.

As you research your condition, keep in mind that a lot of the information you're likely to find can be pretty frightening. This is said without any specific condition in mind because experience shows this is what generally happens. Show whatever disturbs you to your doctor for his or her opinion. Just because the worst case happens to some people, doesn't mean it will happen to you.

For more information:

  • Contact national disease specific non-profit organizations relating to your health condition. To name a few:
    • Cancer: American Cancer Society. offsite link, Tel.: 800.ACS.2345
    • Cerebral Palsy: United Cerebral Palsy, offsite link Tel.: 800 872 5827 or 202 776 0406
    • Cystic Fibrosis: Cystic Fibrosis Foundation, offsite link Tel.: 800 344 4823 or 301 951 4422
    • Diabetes: American Diabetes Association, offsite link. Tel.: 800 232 3472 or 703 549 1500
    • Heart: The American Heart Association. offsite link Tel.: 800.242.8721
    • HIV/AIDS: National Association of People With AIDS. offsite link Tel.: 240.247.0880
    • Huntington's Disease, Huntington's Disease Society of America, offsite link, Tel.: 800.345.4372
    • Kidney: American Kidney Fund, offsite link, Tel.: 866.300 2900
    • Leukemia: Leukemia Society Of America, offsite link, Tel. 800 955 4LSA or 212 573 8484
    • Liver Disease: American Liver Foundation, offsite link, Tel.: 212.668.1000.
    • Lung Disease: American Lung Association, offsite link, Tel.: 800 LUNG USA or 212 889-3370.
    • Lupus: Lupus Foundation Of America, Inc., offsite link, Tel. 800 558 0121
    • Multiple Sclerosis: National Multiple Sclerosis Society, offsite link, Tel.: 800 344 4867
    • Multiple Sclerosis Foundation, Inc., offsite link, Tel.: 800.225.6495 or 954.776.6805
    • Myasthenia gravis: Myasthenia Gravis Foundation Of America, offsite link, Tel.: tel. 800 541-5454
    • Sickle Cell: Sickle Cell Disease Association Of America, offsite link, Tel.: 410.528.1495
    • Spina bifida hotline: Spina Bifida Association Of America, offsite link, Tel. 800 621 3141or 202 944 3285
    • Stroke: National Stroke Association, offsite link. Tel.: Tel: 800 STROKES or 303 649 9299
  • The internet has a wealth of information.
    • Go to a search engine or search engines of your choice (such as offsite link or offsite link) and type in the name of your condition.
    • Consider looking at such sites as:
      • National Health Information Service, offsite link, 800.336.4797 is a health information referral service that puts consumers in touch with those organizations that can provide answers.
      • National Health Information Service also sponsors offsite link with health information about diseases and conditions, medical dictionaries, an encyclopedia, journals and more.
      • National Institutes of Health, offsite link, 800.644.6627 has an A- Z listing of health information
      • Public Health Services Agency For Healthcare Research and Quality (formerly the Agency for Health Care Policy and Research): offsite link, click on Evidence Based Reports: provides science based information on common, costly, medical conditions and new health care technologies
      • The National Network of Libraries of Medicine: offsite link, click on health information. A government site dedicated to making the world's biomedical information available throughout the U.S.
      • Cancer Information Service of the National Institutes of Health: offsite link, a free cancer information service.

To learn more about researching information about your health condition, including how to determine whether a site has object or biased, or totally fake information, see Medical Research On The Web.

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