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What Is A Clinical Trial And How Does A Clinical Trial Work?

What Is My Role During A Clinical Trial?

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It is your job during a trial:

  • To stick to the protocol. Do what you're agreed to do -- and don't do what you're not supposed to.
  • To report if you do not stick with the protocols. Some people don't report non-compliance because of an overriding fear of being booted out of a trial, or that they only tell doctors what they want to hear. However, people's lives are at stake. The investigators need to know the facts.
  • To report the effects of the drug or device accurately. The most accurate method of reporting accurately is to keep a health journal on a daily basis. 
  • To follow your own health markers. If the drugs are not working for you or your health is deteriorating, you need the information to decide whether to leave the trial.
  • To keep up to date about what the investigators are learning throughout the course of the trial. It's the only way to be aware of new information that may affect your decision to continue in the study.

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